It has been my privilege to share my incredible journey with you over these past two years. And oh, what a ride it has been! As promised, bumpy to boot at times - from waiting to be “sick enough” to be listed for transplant through the trial run and all its emotions and then the real deal just a short but trying week later. But what a week that was! I got to stand at the Donate Life Northwest annual Lifesavers Breakfast and represent all those waiting for transplant.
I have decided I have been way too self-centered in my writings. Some has been to protect my family, their identity, their feelings, but some things should be told. I have said this before. I think things are harder on them, on the family and friends who have to watch you go through this stuff. Yes, I went through the actual physical ordeal, and continue to do so, and yes I go through the psychological stuff along with my family, but it’s on a different level.
I do have another really funny scene for my movie. It involves three fellows trying to keep me out of ICU. A nurse who took care of me during transplant and I win. You can only imagine…..it was quite the game! But here’s the good thing. I was out of hotel OHSU in just two days despite all that. Prediction was 5-7 and very worried about needing a pouch. No way! This one beat all the odds.
Fast forward another month. Same old, same old but more intense. At least I am not writing from the hospital, just planning for it again. The big intervention is coming, and I am not excited about it. So the issue is I have “smoldering” diverticulitis. I like the word smoldering, I have heard that about my eyes, but I don’t like it when referring to my gut, especially an infected gut. So there you have it. Everyone is in agreement it must come out.
Can’t believe it’s been almost a month, but there have been two holidays and a lot of basketball and all that goes with it to blame for not sitting down and putting pen to paper. Interesting that now that I have the time, I am right back where I wrote from before – an OHSU hospital room. Bummer! Not the same room; not as nice a view, but I don’t plan on staying as long either. Same floor, same reason. Getting a lot easier to know how to throw the "going to the hospital" bag together.